The Small Fiber Neuropathy Network
We have the nerve to fight back!

Privacy Policy

How we handle information when you visit our website and interact with our community.

Information Collection

This website is designed to be informational and does not require user registration or personal information to access content.

Information We Do Not Collect

  • We do not require user accounts or personal registration
  • We do not collect personal health information through this website
  • We do not use tracking cookies or analytics that identify individual users
  • We do not store personal information submitted through contact forms

Contact Forms

Our contact form uses mailto functionality, which means:

  • Messages are sent directly through your email client to our designated email address
  • We do not store or process contact form submissions on our servers
  • Your email communication is subject to your email provider's privacy policies
  • We will only use submitted contact information to respond to your inquiry

External Communities

We provide links to external community platforms such as Discord and Reddit:

  • These platforms have their own privacy policies and terms of service
  • Any information you share on these platforms is governed by their respective policies
  • We do not control how these platforms collect or use your information
  • Please review the privacy policies of Discord and Reddit before participating

Website Usage

When you visit our website, basic technical information may be collected by your browser and our web hosting service:

  • IP addresses for basic security and functionality
  • Browser type and version for compatibility purposes
  • Pages visited for basic site maintenance
  • This technical data is not used to identify individual users

Third-Party Links

Our website contains links to external websites including medical research, clinical trials, and news sources:

  • We do not control the privacy practices of external websites
  • External sites may have different privacy policies and data collection practices
  • We encourage you to review the privacy policies of any external sites you visit
  • Links to external sites do not constitute endorsement of their privacy practices

Data Security

We implement reasonable security measures to protect any information associated with this website:

  • Website is served over secure HTTPS connections when available
  • We do not store sensitive personal or health information
  • Contact through email is subject to standard email security practices
  • We recommend using secure, private networks when accessing health-related information

Children's Privacy

This website is not directed at children under the age of 13, and we do not knowingly collect personal information from children under 13. If you are under 18, please discuss with a parent or guardian before contacting us or participating in our communities.

Changes to Privacy Policy

We may update this privacy policy periodically. Any changes will be posted on this page with an updated revision date. We encourage you to review this policy periodically.

Last Updated: October 10, 2025

Contact Us

If you have questions about this privacy policy, please contact us through our contact page.