About Us

The Small Fiber Neuropathy Network is a patient-led effort built by people living with SFN. We’re here to make it easier to find clear information, practical tools, and a caring community that understands what you’re going through.

Launched in fall 2025, this project grew out of what we saw running an online community: people needed a place that offered everyday support, reliable education, and zero judgment. At the time, most conversations were happening on a single subreddit—useful, but not designed for ongoing, compassionate, organized support. We set out to change that.

Today, there are no nonprofit organizations focused solely on Length‑Dependent and Non‑Length‑Dependent Small Fiber Neuropathy. Some groups overlap with related conditions (like POTS, peripheral neuropathy, and autoimmune disorders), but SFN-specific needs often fall through the cracks. We aim to help fill that gap responsibly.

Our mission is to raise awareness about SFN, publish plain‑language educational materials, and foster a safe, inclusive community where patients and caregivers can learn, share, and feel less alone. Our long‑term vision is to establish a compliant, transparent nonprofit that can advocate for research, better diagnostics, and equitable care.

A personal commitment of ours is to push for better testing and care for people with SFN who are nonverbal or otherwise unable to communicate their pain. These already at‑risk individuals deserve timely recognition and treatment.

We’re not medical professionals and we don’t provide medical advice—but we do point to trustworthy sources, encourage collaboration with qualified clinicians, and advocate for safe, ethical, patient‑centered care.